Day 2
Thursday, April 10th
The day after my chemo infusion… felt foggy and tired today. I rested on the couch most of the day but had enough energy to go for a walk with Jamie and the kids in the afternoon!
Day 3
Friday, April 11th
Oh boy… a little nauseous waking up this morning and more foggy. Took some Zofran for the nausea and that helped take the edge off. My mouth feels messed up… it hurts and almost feels inflamed and very dry! I have been doing baking powder rinses in hopes that will help. Had some toast during the day and making sure to drink 1-2 liters (ughhhhh I am drowning guys lol I hate water)! Later in the evening I had more of an appetite and ate pizza which actually tasted really good! I talked to my Mom and Dad over the phone that night and shed some tears…. just really nervous for the days ahead and what that will look like. They say days 4-7 will be the worst….
Day 4
Saturday, April 12th
Ohhhhhh LORD…. this sucks!! It was like chemo smacked me in the face this morning and said “Remember me”?? I could barely get from my bed to the couch. Extremely weak, foggy, achy all over with bone pain including my teeth! My face is very flush and feels very hot! Literally just putting icepacks straight to my face haha! I feel short of breath even when resting. My mouth… what is happening to my mouth!! Still very dry and now I have a nasty metallic taste that doesn’t go away. I don’t feel like eating anything including things I LOVE like coffee…. which I never thought possible!! Guys… it’s also snowing today… in April… because why not lol!!! Oh and I have this weird floater/bright light thing going on in the corners of my eyes. I texted Alyssa.. one of my good friends who’s an infusion nurse. She then texted her pharmacist for her input and said its most likely a side effect from chemo. Phew! Thought I was losing an eye ball or something!! OK on a serious note…. it was a tough day. Like really really tough. I cried a lot… thinking I am only on day 4 out of 90ish…. is just beyond daunting.
Day 5
Sunday, April 13th
Not as bad as yesterday but still feeling pretty crappy! I got up to pee about 20 times in the middle of the night… not sure what was up with that. Woke up feeling very achy, weak, nauseas and also super jittery/anxious. I took Tylenol, Zofran and Ativan and slept the entire morning! In the afternoon I had enough energy to take an epsom salt bath. While I was in there I decided to wash my hair that is a current grease pit. I did an apple cider vinegar rinse with WEN conditioner and it was LOVELY!!! I was super gentle and barely any hair came out!! Although typically hair loss usually occurs around day 14…. prayinnnngg I don’t lose too much!! I did a lot of resting this weekend! Friends and family made it a fun weekend for the kids and I am so grateful for that! Lots of meal drop-offs and so much kindness! Thank you everyone!!!
Day 6
Monday, April 14th
Shocker… I woke up foggy and totally out of it this morning… seems like this is a pattern! I took another epsom salt bath today which helped with my achiness and bone pain. This afternoon Jamie asked if I wanted to go for a walk. I looked at him like you have got to be kidding me! I mean I can barely make it to the bathroom and back without huffing and puffing. But I have been pretty miserable stuck inside and fresh air did sound nice! What the hell… I will try! I held Andis hand as we walked down the street. I must have looked like her grandmother because my speed was about a solid 1mph lol. I knew my body couldn’t do a full loop around our neighborhood so we veered off and went down to the baseball field… yes we have a baseball field literally in our backyard. Once we got there I laid in the grass… fetal positon haha and caught my breath. I was so proud of myself! I just laid there on the ground watching Jamie play with the kids… it was a good moment! The walk back felt easier and we even had dinner outside!
PS. Thank you Jamie for being able to see a glimpse of my strength during one of my weakest moments. Love you so much Baba!
Day 7
Tuesday, April 15th
Yup…. woke up foggy again lol!! My MIL came over to help with laundry. I sat on the ground and helped sort clothes. After a while I started getting tired and took another epsom salt bath! Just that alone made me super tired. I rested on the couch and then my Mom and Aunt ended up coming over in the afternoon to help us get ready for camp and clean our camper! Thank you to all my cleaners & babysitters today (Mom, Kathy, Kim & Aunt Barb)! So very thankful!! Jamie and Andi played softball at a friends house so it was just Zacky and I. Honestly I was SO tired but sucked it up and wanted to have a fun night with my little man! We played Jenga and pie face (yes… we both got pie faced lol)! Made huge ice-cream sundaes and then cuddled in his bed and watched a basketball game on my Ipad. Love my one on one time with my kiddos and I wasn’t letting cancer ruin our time together!!
Love that you were able to still play Jenga and Pie Face with your boy. He will probably always remember that moment!❤️
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